Leslie A McCallum
University of Toronto, Canada
Title: Moving from hopeless to hopeful: Understanding the experiences of adults in midlife living with anorexia nervosa
Biography
Biography: Leslie A McCallum
Abstract
Anorexia nervosa (AN) is a complex, life-threatening mental illness with high comorbidity rates. This disorder has one of the worst prognoses of all mental illnesses, with a mortality rate of 10.5%. It affects people of varying socioeconomic statuses, cultures, sexes, genders, and ages. There is no universally effective treatment for adults living with AN. Despite the high percentage of individuals who continue to live with AN for decades, there is limited understanding of what it means to be in midlife living with a disorder that is more commonly noted to occur among adolescents and young adults. This was a qualitative study using constructivist grounded theory methodology. This research was conducted in accordance with the ethics protocol approved by the Health Sciences Research Ethics Board of the University of Toronto. Nineteen individuals in midlife (40 to 65 years of age) living with AN participated in individual, in-depth interviews. Four main findings emerged from this study. First, important differences exist between livings with AN in midlife versus when one is younger. Second, based on this sample and their retrospective accounts, complex trauma is common among individuals in midlife living with AN. Third, midlife can act as a barrier to seeking treatment and/or facilitate disengaging from treatment. Fourth, shifts occur in midlife that can act as catalysts to fully engaging in recovery. Honoring the added challenges that come with midlife, as well as harnessing qualities developed in midlife will help this older age group move forward with their recovery journey, moving from feeling hopeless to feeling hopeful.